Saturday, August 27, 2011

Speaking of Events!

My last blog was about events. Then we REALLY had an event !There is nothing quite as memorable as your darling daughter sitting next to you in church and then pitching over in a never before, totally unexpected seizure! It was an event that I had never anticipated in my lifetime and really not what you want to have happen. We spent the rest of the day at the ER. We have since been to get an EEG; no real abnormalities detected and been to a neurologist. We had to make some adjustments to our plans for the next few weeks (we can not leave her unattended) and were feeling a little better about it until Thursday evening when I called her to go with me to run an errand and she didn't respond. When I called again and she didn't respond, I ran up the stairs and to my distress found her on the floor by the couch unconcious (in a post dictal state) and with pillows lodged around her head (freaky how they were configured that way) (there are just two fairly small and lightweight accent pillows on that end of the couch) I did not witness the actual seizure (so unnerving that I didn't hear anything and I was just downstairs doing seminary paperwork) but the post dictal state was very similar to her first seizure (it may have lasted a bit longer. This seizure (from start [my guess] to finish was approximately 6:40 pm to 7:15. We were truly hoping that she would not have a recurrence. She has now been put on anti seizure medication [Keppra 500 mg twice a day] and we will have to consider her as having a seizure disorder. She has been my semi constant companion for 35 years; she will now be my ever constant companion for the foreseeable future as we try to keep her safe and monitored. In an odd twist of events; Nan has for a long time chattered to herself incessantly [we have always felt it was her coping mechanism for the loneliness and isolation that she has felt over the course of her life with her disability] It is a behavior we have aggressively discouraged. She also is a mad dog vacumn-er which can also be annoying. All of a sudden I am encouraging her chatting and any other noise making (vacumning) because I can monitor her from other parts of the house and know she is safe and not seizing! WEIRD WEIRD WEIRD!